The World According To Suzi is here for me to share my songs, poems and stories. I'll also be sharing food and drink recipes, links and calendars of live music and other happenings in and around the Florida Keys, along with reviews on local restaurants, and tips on things to do. In Suzi's World there is always music, so I'll also be sharing play lists and my recommendations on music-new and old. So, please take a look around, click the links, leave a comment and let me know what you think, share your thoughts and give me a glimpse into your world!

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Saturday, January 6, 2018

HOPE IS WHERE THE HEART IS (5)

"Hope is where the heart is." Wonderful words, written by my dear friend Lisa just before we lost her to leukemia at the young age of 32. She used it to say that those who had never suffered in some way were missing out on understanding the joy of hope. She was an amazing person and inspired everyone around her right up until the day she was taken far too soon.

I wrote the first blog entry under this heading back in April 2014 when Scott was first diagnosed with cancer. What a journey it's been! (Sorry Scott, I know I'm not supposed to refer to it as a journey unless we're going on a cruise...but you won't go on a cruise!) Scott still endures the agony of scanxiety every six months, and he never has to wonder if he'll meet his insurance deductible, but he remains cancer free, and that's a wonderful thing. Our good friend Jeffrey, our "2 in a million" friend, was also recently declared clear after a long, hard battle. He was the other chordoma patient right here in the Keys; statistically impossible, and yet, there it is. We are thrilled for him that he can now look forward to the rest of his life!

Many we know haven't been so lucky. We lost another chordoma warrior this week. A beautiful young angel named Madison Rose. She was 23 years old. When I read the words this morning, I sobbed. First I yelled an expletive I won't repeat here, then I sobbed. I sobbed for a girl who's late teen and early adult years had been nothing but surgeries, treatments, recovery, wash, rinse, repeat. She had endured so much by the time we met her, and yet still smiled the biggest, brightest smile. When I met her, she was in a hospital room at MGH undergoing chemo. She had no hair, was very thin, wearing sweat pants and a Boston Strong t-shirt, hooked up to tubes and wires, but she still sat up and talked and laughed and made everyone in the room feel better. She was one of those souls who gave hope to everyone trying to comfort and take care of her. Her strength, courage and grace were amazing, especially for one so young. She was 19 when we met her, in Boston for her second surgery. She and her family were so full of hope, it was contagious.

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2 comments:

  1. It is amazing that such words can inspire with their energy. The hope becomes important for a strength of mind and a confidence in the future.

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  2. the strongest force in the universe is hope, I'm sure you will be all right, you are doing good things

    ReplyDelete